If my insurance company causes problems or drags their heels too long, I might have to go back to doing Hizentra, but the doctor said that they'd give me steroids so I could get through it without a reaction. I really hope that doesn't happen! Wish me luck people! :)
Even though it's now days after my last infusion, my legs where I inserted the needles are still very itchy, and I'm getting a rash there. Last night the sites were lumpy, not from a build-up of medication this time, but from the rash.
Even though it's now days after my last infusion, my legs where I inserted the needles are still very itchy, and I'm getting a rash there. Last night the sites were lumpy, not from a build-up of medication this time, but from the rash.
My son is on IViG, and uses Gammagard S/D. He also tried SCIG, but got horrific headaches -and was little, getting them twice a week. It was awful. I looked on your links, and you are missing some of the ones related to this product, and thought I'd share them with you. www.mygardian.com is their patient program, you can order all sorts of things that help you track your health, and ways to deal with all your health stuff. They have more explanation of the disease on immunedisease.com.
ReplyDeleteHope these help. Good luck with S/D it's really helped our son.
Thank you, I'll add the links to my list!
ReplyDeleteDid your son get the headaches from doing Gammagard S/D as SCIG, or was he doing one of the normal ones like Vivaglobulin or Hizentra?
Hi...I switched to Gammagard SD from Gammagard due to my IgA deficiency and it has made all of the difference in my side effect profile on infusion days. In addition, I take 40mg of Prednisone in the morning on infusion days and 20mg at night, plus a valium to sleep, and it has made a WORLD of difference! There is a PIDD meeting in Palo Alto on Nov. 6th w/ some Stanford docs (mine was Dr. Lewis, but not sure if he is speaking). Good luck!
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