My nurse from Accredo called today to schedule an appointment to train me to use Gammagard SD as subQ! I'm so excited! She will come next Thursday 11/4. She said to expect her late, which is fine with me because I will be working that day.
The pharmacist from Accredo also called and she said that I will be getting 10g of powder once a week. I don't know what volume that will reconstitute to, but she said I will still be using the Freedom 60 pump (which only holds 60ml of fluid, the same dose of Hizentra that I'm on).
This blog details the struggles that I have encountered while searching for a diagnosis and in getting treatment. If you get sick frequently and can't find answers, read this blog...it might steer you in the right direction! If you have any medical questions about things that are said on this blog, please consult a medical professional.
Friday, October 29, 2010
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