Fifth IVIG Infusion

I had my fifth infusion on Friday, 5/7. It went very well, and I think that perhaps the nurse must have gone through faster transitions than normal, as I was done an hour earlier than expected. I haven't had any real side-effects other than exhaustion and weakness. Neither of them were as bad as usual, yet they both seemed to last longer than they have recently. I'm not sure whether that's due to the speed of the infusion, or just the thing that every infusion is different. I know that the nurse went to a maximum speed 175, which is my normal maximum. Today (Monday), is my first day to feel strong enough to sit at the computer.

Fourth IVIG Treatment

I had a smooth infusion today. My doctor asked the infusion nurses to give me the hydrocortisone before the Benadryl to prevent the strange reaction I had yesterday. I had no reactions, and slept for the first 3.5 hours of the treatment. The entire thing only took 4.5 hours...my fastest yet!


Last night I drank 66oz of both Pedialyte and Smart Water , and was in a much more positive frame of mind for this treatment.


I slept 3 more hours after having lunch when I got home. and after I woke up I had the sudden hunger that I always seem to get after my treatments. I had a healthy dinner and raspberries for a snack, and I actually feel ok and have a little bit of energy. It's kind of encouraging! I'm not holding my breath on the next few days being great, but I'll take it one day at a time. I have a headache and body aches, but they're minor. I think I'll take a little Benadryl tonight.